Publikasjoner og forskningsresultater
Vitenskapelige publikasjoner
Miller, Jeanette Ullmann; Fauske, Lena; Sigurdardottir, Solrun;
Arfa, Shahrzad
; Lippe, Charlotte von der
(2025).
‘In the dark’: parents’ lifelong commitment to supporting children with Bardet-Biedl syndrome.
Health Psychology and Behavioral Medicine.
Vol. 13.
https://doi.org/10.1080/21642850.2025.2467432
Rustad, Cecilie F.; Bragadottir, Ragnheidur; Nordgarden, Hilde; Miller, Jeanette Ullmann; Weedon-Fekjær, Mina Susanne;
Arfa, Shahrzad
; Åsten, Pamela Marika; Tveten, Kristian; Lippe, Charlotte von der; Sigurdardottir, Solrun
(2025).
Healthcare needs, care use and health status outcomes in adults with Bardet-Biedl syndrome: a cross-sectional study in Norway.
BMJ Open.
Vol. 15.
https://doi.org/10.1136/bmjopen-2024-095986
Millgård, Moa; Feragen, Kristin Judith Billaud; Miller, Jeanette;
Arfa, Shahrzad
; Williamson, Heidi; Kling, Johanna
(2022).
Adolescents and parents’ perception of Young Person's Face IT: An online intervention for adolescents struggling with conditions affecting their appearance.
Digital Health.
Vol. 8.
https://doi.org/10.1177/20552076221147110
Arfa, Shahrzad
;
Solvang, Per Koren
; Berg, Berit; Jahnsen, Reidun
(2021).
Participation in a rehabilitation program based on adapted physical activities in Norway: a qualitative study of experiences of immigrant parents and their children with disabilities.
Disability and Rehabilitation.
Vol. 44.
https://doi.org/10.1080/09638288.2021.1907454
Arfa, Shahrzad
;
Solvang, Per Koren
; Berg, Berit; Jahnsen, Reidun Birgitta
(2020).
Challenges and facilitators in supporting sustainable participation after rehabilitation: Experiences of immigrant parents and their children with disabilities.
Scandinavian Journal of Occupational Therapy.
https://doi.org/10.1080/11038128.2020.1856183
Arfa, Shahrzad
;
Solvang, Per Koren
; Berg, Berit; Jahnsen, Reidun Birgitta
(2020).
Disabled and immigrant, a double minority challenge: A qualitative study about the experiences of immigrant parents of children with disabilities navigating health and rehabilitation services in Norway.
BMC Health Services Research.
Vol. 20.
https://doi.org/10.1186/s12913-020-5004-2
